The Fight To Preserve My Uterus After Developing Fibroids
I swore I was about to bleed to death.
I was at work, standing in a bathroom stall frantically scrubbing my pinstriped lavender pants, shamefully unaware of the stain on them when I walked into the restroom for the umpteenth time and mad that I didn't wear black.
I caught my reflection on my way back to my desk to retrieve my cell phone. I was beginning to look gaunt. My iron count was so dangerously low that I was prescribed supplements, and I lost over 10 pounds – weight I worked so hard for years to gain, mind you – plus muscle all in one month.
I was suffering from uterine fibroids--benign tumors that grow within the uterus and a condition that disproportionately impacts 80% of Black women. While most women are asymptomatic and can continue life as normal, my symptoms--including frequent restroom breaks, lower back pain, and a hard, slightly round stomach equivalent to a 12-week pregnancy, according to my doctor – were a little more severe because of the fibroids' location and size. Fibroids can be as small as the width of a pea and as large as a grapefruit. Judging from the amount of blood loss, mine might've been approaching the size of a lemon or tangerine. I called my doctor for an emergency appointment because the bleeding wouldn't relent, and I was on track to pass out somewhere.
“It's been over three weeks," I said to the receptionist at my doctor's office.
The next morning, my gynecologist and I sat down to finalize a treatment plan. I was nervous about the whole idea of undergoing surgery, but I was relieved that I didn't have to have a hysterectomy, or the removal of all or part of the uterus and cervix. Unless it was cancerous, I didn't see the point of sacrificing a functioning organ, and according to an article in the International Academy of Pelvic Surgery, more women are opting for uterine preservation for reasons other than fertility: Sexuality and body image issues and personal and cultural preferences are presiding factors.
So it's important to know that a hysterectomy isn't a woman's only choice for fibroid relief, although many women think so and doctors may push for one as a solution when it should be the absolute last resort. In fact, the American College of Obstetricians and Gynecologists says that 76% of all hysterectomies performed today were unnecessary. But some doctors aren't exactly familiar with the newer medical advances, or they find them too “time-consuming," as my doctor once pointed out. Hysterectomies are routine, but patients face longer recovery periods, instant menopause, and bladder and sexual dysfunction. But despite the fact that my symptoms may have fallen on the more severe side of the spectrum, my GYN and I agreed that another option would be ideal.
Initially I had previously picked up a pamphlet for uterine fibroid embolization (UFE), partly to duck surgery. UFE, also known as uterine artery embolization, is a minimally invasive procedure that works by injecting contrast material – which may cause an allergic reaction in some women – into a woman's upper thigh to block arterial flow to the fibroids. It takes 1-3 hours and the patient is sedated – but not asleep – so she can follow any directions given by the interventional radiologist. Women can expect bleeding and pain from the breakdown of fibroid tissue from anywhere between a few weeks to a few months, although my doctor mentioned that some patients end up in the emergency room for “excruciating pain from dying tissue." In a few of those cases, women face emergency hysterectomies because of infections. But in best case scenarios, most women can resume usual activities in about a week.
However UFE isn't recommended for patients like me who do wish to preserve fertility because it shuts off blood flow that would be necessary for a future fetus. So I was left with the pill, myomectomy, or a combination of the two.
“I see the pill didn't work," my GYN said as he opened my chart.
The pill was supposed to have been the first step in controlling the profuse bleeding, and usually it does work for most women. It did for me, until my fibroids grew rebellious. Since I was already on oral contraception, my doctor just prescribed a different variation with iron. But to be honest, that pill was brown and looked funny (as in chalky-funny), and after years of taking the same tablets with no side effects, I was too stubborn to switch to a new one, anyway. Plus I convinced myself that I didn't drink enough water for my body to properly process iron, so that was that.
Ultimately I chose the laparoscopic, or robotic, myomectomy to remove the fibroids and keep my uterus intact. During this procedure, the surgeon makes a series of 3-5 one-inch incisions preferably along the bikini line but sometimes nearer the belly button where mine are located. A tube with a camera and small surgical instruments are then inserted into the abdominal wall. With the use of a “robot" or a separate console, the surgeon controls the instruments to cut the fibroids into “strips" thin enough to remove through the incisions. The surgery should've taken a few hours, but mine was nearly three times as long because my doctor and his colleague discovered more fibroids than were on the MRI once they were inside. But they were determined to complete the surgery without making a full cut across my abdomen. Some patients can go home the same day, however, I spent the night at the hospital, probably because I woke up late evening. I also needed a blood transfusion midway surgery, which UFE patients don't have to worry about. Recovery is about 6-8 weeks.
Three years later, at least one fibroid returned, which is a risk with both the UFE and myomectomy. But I still have no physical symptoms including fatigue, heavy bleeding, and severe anemia. I do try to practice a bit of self-care (again) because that was one thing that changed post-surgery. Now I'm more mindful of what I eat because some experts say what we put in our bodies – and on our bodies, like hair relaxers – can encourage the (re)growth of fibroids. It's possible genetics play a part, too. But there's no definitive answer.
There's also no cure for fibroids, and the only surefire way to get rid of them once and for all is through a hysterectomy, but that should still be a woman's choice. We shouldn't be led to believe we have no other recourse to both manage fibroids and maintain our uterus when, in fact, we do. Of course, treatment options vary depending on the patient, her medical history, and reproductive choices among other factors. This list of treatments isn't exhaustive, and as with any medical procedure, you should always consult your doctor and perform your own thorough research before making a final decision.
Have you had fibroids? What are some tips that you've learned to help with managing them?
Featured image by Getty Images
I write about lifestyle and women's health and wellness. When I'm not in front of a computer screen crafting stories, I'm in a kitchen crafting cocktails. Follow me on the 'gram @teronda.
ItGirl 100 Honors Black Women Who Create Culture & Put On For Their Cities
As they say, create the change you want to see in this world, besties. That’s why xoNecole linked up with Hyundai for the inaugural ItGirl 100 List, a celebration of 100 Genzennial women who aren’t afraid to pull up their own seats to the table. Across regions and industries, these women embody the essence of discovering self-value through purpose, honey! They're fierce, they’re ultra-creative, and we know they make their cities proud.
VIEW THE FULL ITGIRL 100 LIST HERE.
Don’t forget to also check out the ItGirl Directory, featuring 50 Black-woman-owned marketing and branding agencies, photographers and videographers, publicists, and more.
THE ITGIRL MEMO
I. An ItGirl puts on for her city and masters her self-worth through purpose.
II. An ItGirl celebrates all the things that make her unique.
III. An ItGirl empowers others to become the best versions of themselves.
IV. An ItGirl leads by example, inspiring others through her actions and integrity.
V. An ItGirl paves the way for authenticity and diversity in all aspects of life.
VI. An ItGirl uses the power of her voice to advocate for positive change in the world.
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ItGirl 100: Get To Know Some Of The Most Inspiring And Empowering Women On Our List
The ItGirl 100 List, in partnership with Hyundai, is a celebration of 100 Black women who aren’t afraid to pull up their own seats to the table.
We often see lists featuring amazing women who are seasoned in this thing called life, and our ItGirl 100 List gives flowers to the people they’ve passed the torch to: young millennial and Gen Z women who are innovating and disrupting in today’s world of advancement.
xoNecole has partnered with Hyundai for its inaugural ItGirl 100 List to give these women their flowers today. It’s a celebration of 100 Genzennial women who have built their own tables, launched new businesses, and redefined what it truly means to be blessed, booked, and busy.
Here’s a snapshot of fun facts from a few of the women listed on the ItGirl 100, representing the East, West, Midwest, and South:
EAST
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DJ 9AM: DJ & Curator
Representing: Brooklyn
Ultimate ItGirl Song: "On My Mama" by Victoria Monét
Favorite OG It Girl: Nia Long
Zodiac Big Three: Cancer Sun, Taurus Moon, Pisces Rising
Favoring open-format, multi-genre mixes, this DJ has created a winning reputation for rocking a crowd with seamless transitions and selections, always representing Southwest musical and cultural influences.
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Tiffany James, Founder, Modern BLK Girl
Representing:Brooklyn
Ultimate ItGirl Song: "Lucky Girl" by Carlina
Favorite OG It Girl:Naomi Campbell
Zodiac Big Three: Sagittarius Sun, Leo Moon, Virgo Rising
Modern BLK Girl is one of the leading investment groups among women of color, and the founder serves as an avid investor, community builder, and advocate. Tiffany James is also a mentor, utilizing her unique combination of financial and fashion expertise.
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Kat Mateo, Casting Director
Representing: New Jersey
Ultimate ItGirl Song: "Princess Going Digital" by Amaarae
Favorite OG It Girl: Kelis, Eve, Lil Kim
Zodiac Big Three: Aries Sun, Cancer Moon, Cancer Rising
Thriving as a casting director and stylist, Kat Mateo offers a unique point of view that has shaped New York Fashion Week shows, ad campaigns, and editorials. She has also been a major contributor to cultural conversations related to fashion and inclusivity.
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Denise Stephanie Hewitt, Photographer
Representing: Brooklyn
Ultimate ItGirl Song: "Experience" by Victoria Monét
Favorite OG It Girl: Hannah Montana
Zodiac Big Three: Taurus Sun, Aquarius Moon, Aquarius Rising
This Gordon Parks Foundation scholar is a full-time student who has been working to expand her freelance career in photography. Denise is also been featured among Essence'sinaugural list of "Top 10 Creators Under 30," for her unique aesthetics and perceptions through her art.
WEST
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Nayamka Roberts-Smith, Aesthetician
Representing: Los Angeles
Ultimate ItGirl Song: "Tomorrow 2" by GloRilla & Cardi B
Favorite OG It Girl: Meagan Good
Zodiac Big Three: Sagittarius Sun, Leo Moon, Capricorn Rising
Nayamka Roberts-Smith is an award-winning professional in the skincare industry and serves as an educator, offering knowledge on beauty culture. She also is a well-sought-after speaker on beauty and women’s issues, with a following of more than 1 million on social.
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Desiree L. Talley, Esq., Vice President, Legal & Business Affairs, Revolt TV
Representing: Los Angeles
Ultimate ItGirl Song: "Nice" by The Carters
Favorite OG It Girl: Issa Rae
Zodiac Big Three: Cancer Sun, Scorpio Moon, Cancer Rising
An attorney and storyteller, Desiree L. Talley meshes relatability with her legal smarts for the culture. She advocates for cultural advancement and societal change through her POPLAW Podcast while balancing her executive duties at Revolt TV.
Marley Rae
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Marley Rae, Organizer, WalkGood
Representing: Los Angeles
Ultimate ItGirl Song: "Nice For What" by Drake
Favorite OG It Girl: Mariah Carey
Zodiac Big Three: Capricorn Sun, Taurus Moon, Leo Rising
Marley Rae is a Nike Athlete, certified yoga instructor, COO, and Director of Health and Wellness for WalkGood LA, a family-founded non-profit organization. She is dedicated to fostering understanding and care in local and global communities.
MIDWEST
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Shawnee Dez
Representing: Chicago
Ultimate ItGirl Song: "FreeBody Freestyle" by Shawnee Dez
Favorite OG It Girl: Toni Morrison
Zodiac Big Three: Cancer Sun, Aquarius Moon, Cancer Rising
Shawnee Dez is an artist who's all about captivating her audience through encouragement and empowerment. Her music features fluid harmonic layering, live instrumentation fused with digital production, and her unique multi-talented voice in an alto melodic tone.
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Bianca Pastel, Visual Artist
Representing: Chicago
Ultimate ItGirl Song: Anything by Whitney Houston
Favorite OG It Girl: Grace Jones
Zodiac Big Three: Taurus Sun, Leo Moon, Sagittarius Rising
Bianca Pastel's artistic portfolio includes fine art, illustrations, and animation, and she's worked with clients including Disney Pixar, and the NFL, to name a few. Her focus is "empowering the experience of being a Black child and dealing with mental health issues."
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Donyale Walton, Founder, Hoop Mobb
Representing: Detroit
Ultimate ItGirl Song: "Yeah I Said It" by Rihanna
Favorite OG It Girl: Aaliyah
Zodiac Big Three: Virgo Sun, Libra Moon, Capricorn Rising
Donyale Walton's brand Hoop Mobb, celebrates the Black and Brown fashion and cultural impact and presence of hoop earrings. It's grown to earn more than seven figures in annual revenue and a nationwide community of loyal consumers.
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Ticara Devone, Content Creator
Representing: Chicago
Ultimate ItGirl Song: "She's a Bitch" by Missy Elliott
Favorite OG It Girl: Ananda Lewis
The Zodiac Big Three: Libra Sun, Taurus Moon, Virgo Rising
A trusted sneaker enthusiast and content creator, Ticara Devone uses dynamic storytelling to hold space for others with a passion for sneakers. A published writer, she’s worked with brands including Nike and Footlocker and inspires us all by ensuring women are vocal and seen in the multi-billion dollar shoe space.
SOUTH
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AllyiahsFace, Content Creator
Representing: Atlanta
Ultimate ItGirl Song: "Go Off" Doja Cat
Favorite OG It Girl: Gabrielle Union and Halle Berry
Zodiac Big Three: Gemini Sun, Leo Moon, Scorpio Rising
AllyiahsFace's YouTube channel has more than 830,000 subscribers, and she's been hitting the ground running since 2015. Her content creation, which centers on beauty, fashion, and lifestyle, has led to a lucrative career and drawn a close-knit social and real-life community to view and be inspired.
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Jaycina, Executive Director, Tender
Representing: Atlanta
Ultimate ItGirl Song: "All I Got" by Amel Larrieux
Favorite OG It Girl:Tracee Ellis Ross
Zodiac Big Three: Leo Sun, Sagittarius Moon, Sagittarius Rising
Jaycina is a signed model with a nonprofit that works to provide support and community for single mothers in Atlanta. She's also appeared in campaigns for brands including Fenty and GAP as well as features in all your favorite magazines and on billboards across the country.
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Asha Christian, Founder, Coily App
Representing: Atlanta
Ultimate ItGirl Song: "It's My Life" by Mariah Carey
Favorite OG It Girl: Toni Childs (Girlfriends)
Zodiac Big Three: Sagittarius Sun, Leo Moon, Leo Rising
Asha Christian created Coily to provide beauty recommendations utilizing social data. It offers a more personalized, AI-driven experience for users and part of her mission is to provide solutions related to diversity and put the focus back on the consumer. Meshing tech and culture, Christian is innovating with options that exemplify the Black girl magic needed in tech.
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Featured image by FG Trade/Getty